Tuesday, June 26, 2012


I haven't posted in so long, and I haven't been consistent at all of late.  Just wanted you all to know that we are so touched by all of you who have followed this blog through the many, many hard months.  Andrew had been looking so well, feeling so well, doing so well recently that we thought, at last, that this terrible stuff would be behind us soon.  It seems not to be the case.   Two weeks ago Andrew found another small lump on his neck. We were concerned but knew it could be inflammation from the chemo.  We knew there was really nothing to do until the final PET scan.  He had the PET last week, and we went to Albany today for the results.  The PET showed that the cancer has not completely gone.  And there are some spots that are lighting up even brighter than after round 4 PET, most concerning in his liver. Dr. E. was pretty frank -- it's not a great situation.  He will have a biopsy Monday of either the liver or the new neck lump, and then he will start 4 rounds of a new, intense chemo to prepare for autologous stem cell transplant.   Salvage, they call it. We are planning to call our old Dr.'s, Dr. W and Dr. L. from Westchester for opinions, and probably head down to Sloan as well, although it all has to happen rather quickly.  We're very sad, as we never thought it would ever come to this, but hopeful as well.  We're going to give it everything we've got.


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