Oy! I was in a really bad mood when I wrote that last post. I'm realizing that I don't write much when things are going well -- we're too busy trying to enjoy a semi-normal life -- but when things are difficult, it just pours out of me. Cancer life is so up and down -- we have good days and really bad days.
We did get some good news this week though. Dr. E is recommending that we switch to a less aggressive chemo, R-CHOP, based on Andrew's new diagnosis. Because Mantle Cell lymphoma has been ruled out, the hyper-CVAD regimen is no longer necessary. She has ordered a PET scan for Wednesday to see how things are progressing, and then Andrew will be admitted for round 5 on Thursday. R-CHOP is basically the same drugs that are used in the A cycle, every round -- no B cycle. hooray! she also believes that Andrew can stop the intrathecal infusions now -- 6-8 was the plan, and he's had 7. So things are looking up for the second half!!
Thanks again for all of the supportive messages and emails. This was such a difficult month for us and I'm sorry if I haven't properly responded. The love and support means so much to us.
xoxo
Linda
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